Living at Random » Entries tagged with "neurofibroma"
A Big Decision at Fourteen
ch_client = "manojt"; ch_width = 300; ch_height = 250; ch_type = "mpu"; ch_sid = "Chitika Default"; ch_alternate_ad_url = "http://www.theunrealuniverse.com/ads/ads1.php?size=300x250&kwds="; ch_color_site_link = "#164675"; ch_color_title = "#164675"; ch_color_border = "#B0C9EB"; ch_color_text = "#333333"; ch_color_bg = "#FFFFFF"; It was the summer of 1987. My uncle and I were seated in one of the small clinical examination rooms of Shriner’s Hospital for Crippled Children in Los Angeles, CA. It was my second trip to the US. The first was a couple of years ago — when stayed about a year in the US — when the Shriner’s sponsored my trip for the first time. [Although my parents were with me for both trips, my uncle was designated as my official guardian while I am in the US because he was a citizen.] A few pleasantries were exchanged and the doctor asked how I was doing since … Read entire article »
Filed under: Life with NF
Dealing with the Pain
ch_client = "manojt"; ch_width = 300; ch_height = 250; ch_type = "mpu"; ch_sid = "Chitika Default"; ch_alternate_ad_url = "http://www.theunrealuniverse.com/ads/ads1.php?size=300x250&kwds="; ch_color_site_link = "#164675"; ch_color_title = "#164675"; ch_color_border = "#B0C9EB"; ch_color_text = "#333333"; ch_color_bg = "#FFFFFF"; I have never been able to remember when I first experienced the pain associated with my NF. Perhaps it was because I always had a high-level of pain tolerance even when I was very little. But as I grew older, my left leg — on which had numerous nerve endings had formed — had become very sensitive to pain. If I accidentally bump my leg against something, it was horrible. The pain would just go up and down my leg. With the amount of nerve tissues on that leg, I was already told by my doctors and my parents at a very young age that eventually, the leg … Read entire article »
Filed under: Life with NF
Center of Attention
ch_client = "manojt"; ch_width = 300; ch_height = 250; ch_type = "mpu"; ch_sid = "Chitika Default"; ch_alternate_ad_url = "http://www.theunrealuniverse.com/ads/ads1.php?size=300x250&kwds="; ch_color_site_link = "#164675"; ch_color_title = "#164675"; ch_color_border = "#B0C9EB"; ch_color_text = "#333333"; ch_color_bg = "#FFFFFF"; Because of neurofibromatosis, my left leg was malformed. It was longer than my right leg and was continuously growing faster. It was one of the first things noticed by my parents before they found out that was related to neurofibromatosis: whenever I walked or ran, there was a good chance that I’d trip over myself. Aside from being longer my left leg was also bigger than the right leg. From what I understand, the surgery I had when I was four explored the possibility of removing the neurofibromas that were in my leg. I guess, unfortunately, the doctors then found it risky to do anything else and so … Read entire article »
Filed under: Life with NF