Living at Random » Entries tagged with "support"
A Big Decision at Fourteen
ch_client = "manojt"; ch_width = 300; ch_height = 250; ch_type = "mpu"; ch_sid = "Chitika Default"; ch_alternate_ad_url = "http://www.theunrealuniverse.com/ads/ads1.php?size=300x250&kwds="; ch_color_site_link = "#164675"; ch_color_title = "#164675"; ch_color_border = "#B0C9EB"; ch_color_text = "#333333"; ch_color_bg = "#FFFFFF"; It was the summer of 1987. My uncle and I were seated in one of the small clinical examination rooms of Shriner’s Hospital for Crippled Children in Los Angeles, CA. It was my second trip to the US. The first was a couple of years ago — when stayed about a year in the US — when the Shriner’s sponsored my trip for the first time. [Although my parents were with me for both trips, my uncle was designated as my official guardian while I am in the US because he was a citizen.] A few pleasantries were exchanged and the doctor asked how I was doing since … Read entire article »
Filed under: Life with NF
What does the future hold?
ch_client = "manojt"; ch_width = 300; ch_height = 250; ch_type = "mpu"; ch_sid = "Chitika Default"; ch_alternate_ad_url = "http://www.theunrealuniverse.com/ads/ads1.php?size=300x250&kwds="; ch_color_site_link = "#164675"; ch_color_title = "#164675"; ch_color_border = "#B0C9EB"; ch_color_text = "#333333"; ch_color_bg = "#FFFFFF"; Growing up as a kid with NF, I’m sure my parents had this nagging question inside their heads at one time or another: “Will he grow up to be normal?” I’m guessing that the ”growing up to be normal” question isn’t really exclusive to parents whose kids have NF, other disabilities or special needs. It’s a question that all parents deal with but the question comes with a bigger question mark for parents of NF children because NF itself is sort of a question mark in the sense that the parents will never know when, how and to what extent NF will manifest itself. My parents never gave a … Read entire article »
Filed under: Life with NF
Dealing with the Pain
ch_client = "manojt"; ch_width = 300; ch_height = 250; ch_type = "mpu"; ch_sid = "Chitika Default"; ch_alternate_ad_url = "http://www.theunrealuniverse.com/ads/ads1.php?size=300x250&kwds="; ch_color_site_link = "#164675"; ch_color_title = "#164675"; ch_color_border = "#B0C9EB"; ch_color_text = "#333333"; ch_color_bg = "#FFFFFF"; I have never been able to remember when I first experienced the pain associated with my NF. Perhaps it was because I always had a high-level of pain tolerance even when I was very little. But as I grew older, my left leg — on which had numerous nerve endings had formed — had become very sensitive to pain. If I accidentally bump my leg against something, it was horrible. The pain would just go up and down my leg. With the amount of nerve tissues on that leg, I was already told by my doctors and my parents at a very young age that eventually, the leg … Read entire article »
Filed under: Life with NF